The e-Patient Bootcamp on the 28th of September was the first-ever compilation of keynotes and panel presentations by Dave deBronkart, also known as E-Patient Dave. Speaking to many audiences over the past two years in different sectors, he gained the status of a highly rated international keynote speaker. The bootcamp put thousands of dollars of conference content in one single day. Consisting of four sessions, the masterclass raised subjects from ‘Health on the internet’ to ‘Shared Decision Making’.
There is a lot to learn from patients that are willing and able to share their expertise with professionals. Expertise since they are the experts in having a disease. More often people hear about and from patients advocates or e-patients, that are addressing important topics in healthcare.
Session 1: History of Patient Engagement, and a Case Study
- Medical and cultural precursors; pioneers of e-patient behavior
- Case study: my near-fatal cancer, and how the internet supplemented the excellent medical and surgical care I received
- Pay it forward: my first blog
Session 2: ‘e-Patients: Empowered, Engaged, Equipped, Enabled’
- Discovering the e-patient movement and ‘the e-Patient White Paper’
- How can it be that patients – without medical degrees – can genuinely bring value to the table?
- Health on the internet: harnessing the value, preventing the risks
- Doctors online – shifting the balance of online quality
Session 3: ‘Give Us Our Data’ – reshaping care through health IT
- The validity and usefulness of patient access to medical records
- Patient engagement becomes Federal policy: the US government’s Meaningful Use rules
- Data quality in our medical records: my experience
- ‘Google Earth for my body’
- Innovation in the era of Open Data; the Startup Health initiative
Session 4: The future of ‘e’: other e-patients and reshaping the care dynamic
- We are many: other e-patients and their stories
- e-Patients and clinical trials
- Shared Decision Making: Engaged patients at the decision table
- A glimpse of the future: What Watson may mean for e-patients and their clinicians
Plus: hands-on exercises
- Researching disease information – filtering the gold from the garbage
- Patient communities
- Group discussions
E-Patient Dave is a dynamic, highly rated international keynote speaker, author, and advisor on government policy. The Boston Globe called him ‘a recognized online champion of participatory medicine.’ Health Leaders featured him in its ‘Patient of the Future’ cover story and named him (and his physician, Dr. Danny Sands) to their ‘Twenty People Making Healthcare Better.’ See his bio for more information.
Years ago, The Radboud University Nijmegen Medical Centre started to give these patients a stage, allowing them to tell their stories to healthcare professionals and other parties. This resulted in for instance Pecha Kucha Nights, where patients and healthcare professionals talked about chances for healthcare.